全台灣目前將近有一萬個家庭深受罕見疾病之苦，但大多數都沒有積極治療的方式，還必須負擔沉重的醫療及照護費用，讓罕病家庭成為社會中極弱勢的族群。台灣弱勢病患權益促進會除了建立病患家庭、病友團體和醫療專業的溝通平台，促進醫病溝通、扶助病友 及家屬之外，也積極參與政府優生保健、罕病防治政策研擬，並推動新生兒篩檢和遺傳諮詢防治，希望能儘早發現罕病兒並避免罕病的不幸再度發生。 罕見疾病種類繁多，病患需求差異性大，在照護與成長的過程中，病患與家屬除了需要醫療專業外，病友彼此間的支持與鼓勵也是不 可或缺的，為促進同病類之病友能凝聚彼此感情。 目前全台灣有將近 270 種罕見疾病，除了經由台灣弱勢病患權益促進會及罕見疾病基金會共同扶持協助成立的團體組織外，尚還有許多人數相當稀少的疾病並無法有固定的聚會或聯絡的管道，彼 此更因為缺乏經驗交流分享而獨自面對疾病人生。 而對很多人來說，走出戶外踏青去應該是一件非常輕鬆快樂的事情，對於罕病病友來說，也是他們心中深深的期盼。礙於身體的不便、照護的顧慮與外界的眼光，只能將這小小心願深埋心中。為了滿足病友這殷切的期盼，也讓病友家庭得以藉由出遊達到舒壓放鬆 及暫時喘息的療效。本會從 2017 年起與台灣弱勢病患權益促進會開始共同舉辦病友旅遊活動，環遊全台各地都留下了病友們快樂的笑容。同時本會也藉由舉辦一日體驗的活動，拉近與民間夥伴與罕病病友的認識與互動，也讓社會大眾更清楚罕病家庭實際的生活情況與他們強韌的生命鬥志。 今年本會第五度與台灣弱勢病患權益促進會合作，帶領醫療弱勢病友於10月23日於台中舉辦「罕見醫療弱勢跨病類台中一日病家喘息聯誼活動」，增加罕見醫療弱勢病友們外出旅遊之機會放鬆身心，更藉由一日遊活動讓各病友家庭能拓展生活育樂圈，並提供各病友家庭們聯誼交流及照護經驗分享的機會，達到相互關懷鼓勵之功能，進而放鬆心情。
[Story Category:] 5헌장지역 – OSEAL(동양 및 동남아시아 라이온)
Sight For Kids Activity During World Sight Day
Out of the 200 grade 5 pupils screened at Felipe Tayko Memorial School (an elementary school), 26 students were found to be myopic or nearsighted. And out of the 26 students, 5 have amblyopia or lazy eyes just because there was no appropriate management/treatment given, and that is only a pair of spectacles when they… Sight For Kids Activity During World Sight Day 계속 읽기
World Sight Day Activities
Lions Clubs International District 301-B2 organized a series of activities in celebration of “World Sight Day.” The activities began with the “Minding Myopia” symposium on October 12 at Bethel Guest House. This activity seeks to spread awareness about the rising cases of myopia or nearsightedness in the country and how it can negatively affect people’s… World Sight Day Activities 계속 읽기
Celebration Mission: Inclusion through Japan Lions Leadership
On the sidelines of the 77th United Nations General Assembly in New York City, Special Olympics hosted its Global Health Leadership Summit to highlight the urgent need for inclusive health programming in support of individuals with intellectual disabilities. In partnership with the Golisano Foundation, the Special Olympics Global Health Leadership Summit brought together leaders from… Celebration Mission: Inclusion through Japan Lions Leadership 계속 읽기
Children Get Cancer Too
Article Written by: Lion Dr. John Anthony Tindoc, a Pathologist by profession. Childhood is a time of play, of relentless joy, of dreaming free. It is also a time of bruised knees, broken crayon, and the occasional runny nose. But for a small fraction of children, fate is less forgiving. Approximately three percent (3%) of… Children Get Cancer Too 계속 읽기
Eye & Medical Mission
This activity was organized by the Dumaguete City Host Lions Club in cooperation with the Drugstore Association of the Philippines-Negros Oriental Chapter and Negros Oriental Provincial Eye Health Team in Barangay Taclobo, Dumaguete City, Negros Oriental, Philippines. This activity was made possible because of the kind assistance of the Barangay Captain Roger Bohol, Barangay Health… Eye & Medical Mission 계속 읽기
Medical Mission at Barangay Taclobo
Concluded Activity by our club with the Drugstore Association of the Philippines-NegOr Chapter and NegOr Provincial Eye Health Team in Brgy Taclobo, Dumaguete City. Thanks to Hon. Roger Bohol, Brgy. Captain for supporting this cause and for your cooperation. Taclobo residents were happy to receive the ff: ✅️ Medical consultation ✅️ Eye consultation & refraction… Medical Mission at Barangay Taclobo 계속 읽기
Vision Screening
A fruitful day to remember.* This initiative helps pupils from Valencia Central Elementary School spend more time playing outside during break time to drive myopia away. More GREEN time, LESS screen time. This Sight For Kids and Myopia Prevention project was organized by the Dumaguete City Host Lions Club, in collaboration with the Fred Hollows… Vision Screening 계속 읽기
Eye Mission and Feeding Activty
Serving the Indigenous Peoples of Banban, Ayungon, Negros Oriental, Philippines last August 20, 2022. We were blessed to have concluded our joint activity – vision screening, refraction, eye health awareness, and feeding. This activity is in collaboration with Negros Oriental Provincial Eye Health Team (sponsored by the Fred Hollows Foundation) and Dumaguete City “Host” Lions… Eye Mission and Feeding Activty 계속 읽기
疫情下～捐贈偏鄉弱勢兒童平板電腦在家自學
蓮花獅子會安心助學計劃〜致贈偏鄉學校平板電腦 LCIF / DCG 回撥款造福學童 蓮花獅子會秘書 陳懿薇 蓮花獅子會年度舉行的｢區及分會社區影響撥款(DCG)｣社會服務案，江寶華會長經多方詢問及審慎考量後提案｢捐贈偏鄉學校平板電腦｣方案，經由理監事及全體參與會議獅姐鼓掌通過此一議案，提供偏鄉弱勢學童向學校出借於疫情警戒期間於家中線上教學使用，讓家中沒有電腦3C產品的學童，學習不中斷。 這次捐贈的學校位於花蓮縣鳳林鎮的北林國小，該國小為偏遠地區小型學校，全校共六班，一至六年級各一班，目前全校學生人數僅22人，校園環境優美，學童樸實單純。家長絕大多數務農、幫農或打零工，謀生不易收入僅以溫飽。貧困弱勢學生的比例達六成以上，其中單親家庭與隔代教養學生多，以及新移民母親比例高，約有四成左右的新台灣之子。在生活條件不佳的情形下，更遑論家中擁有電腦相關學習產品。 在本會收到國際基金會標準撥款支票後即刻進行購買平板電腦及精緻點心事宜，並與北林國小接洽溝通，以不打擾學生上課時間為要，訂定3月14日上午舉行捐贈儀式。當日由北林國小朱天德校長親自與全校師生迎接蓮花獅姐們的到來，在300 F區LCIF林照鳳協調長、LCIF陳惠卿副協調長、駐區副財務長陳碧珍及江寶華會長偕同第二副會長朱愽琴與多位獅姐們的歡喜見證下，舉辦DCG愛心物資捐贈儀式。除了捐贈平板電腦，本會同時捐贈多功能愛心傘及精緻可口點心，受到學童們的歡呼和喜愛，朱校長對蓮花獅子會為北林國小學習上注入一股暖流而頻頻致謝。 蓮花獅子會以在地國際社服團體回饋家鄉的偏鄉學校，讓學童因疫情影響下，造成停課而導致學習中斷時，即可向學校出借電腦回家使用，快樂學習。開心的孩童們現場以排笛演奏多首樂曲，師生們跟著旋律一同唱和，將節奏輕快悅耳的歌聲，化成最美麗的音符，回饋給今天到來的獅子會叔叔和阿姨們。 國際獅子會提供在地的即時服務，並提供偏鄉學童在家庭環境不佳之狀態下，未能得到良好的學習工具資源，蓮花獅子會提供了這項教育學習服務，將平板筆電挹注偏鄉學校，提升及充實孩子們的學習效率，獅姐們也紛紛展現獅子服務精神，親自關懷並與學童們熱情互動，頓時歡笑聲迴盪在優美的校園中，現場美好的氛圍深深觸動所有人心，We Serve 我們服務，此時下了最好的註解！